COVID-19 message from NTSAD

The Impact of COVID-19 is ongoing and remains uncertain. We are following recommendations and doing what is best for our community.

We hope that you along with all of our friends, partners, and supporters are managing as best as you can as we live through this unprecedented time.
NTSAD's office in the Boston area remains closed in accordance with the Governor's declaration; however, we want to assure you that the NTSAD staff continues to work remotely to support families and to sustain our important mission.
During this time, we are in touch with our families, researchers, clinicians, partner organizations, and industry members. We are offering specialized programming and critical information as it relates to the coronavirus and its impact on our rare disease community. 
We're here for you. Connect with us at This email address is being protected from spambots. You need JavaScript enabled to view it. and we can set up a phone call or even Zoom chat to talk about your questions and concerns.
We value you and our community. We thank you for your long time support of NTSAD. If you are able to support NTSAD, please give now.

Consider following the latest news on the Centers for Disease Control (CDC) website here or the World Health Organization (WHO) here to keep yourself and your family healthy.