Advocacy - NTSAD Information to help advocate for legislation and other related advocacy issues.

]]> https://mail.ntsad.org/index.php/resources/library/advocacy?format=html Mon, 12 Apr 2021 07:38:07 -0400 en-GB hourly 1 2021 January NTSAD FDA Late Onset GM2 Patient Listening session https://mail.ntsad.org/index.php/resources/library/advocacy/516-2021-january-ntsad-fda-late-onset-gm2-patient-listening-session?format=html 2021 January NTSAD FDA Late Onset GM2 Patient Listening session Members of the Late Onset Tay-Sachs and Sandhoff (LOTSS) community participated in a listening session with the U.S. Food and Drug Administration (FDA), so regulators could better understand the impact of heterogenous disease on the lives of individuals and their families.

]]> https://mail.ntsad.org/index.php/resources/library/advocacy/516-2021-january-ntsad-fda-late-onset-gm2-patient-listening-session?format=html Members of the Late Onset Tay-Sachs and Sandhoff (LOTSS) community participated in a listening session with the U.S. Food and Drug Administration (FDA), so regulators could better understand the impact of heterogenous disease on the lives of individuals and their families.

]]> peg@pegdoyle.com (Peg Doyle) Advocacy Mon, 12 Apr 2021 07:38:07 -0400 US Senate Twitter handles https://mail.ntsad.org/index.php/resources/library/advocacy/362-us-senate-twitter-handles?format=html US Senate Twitter handles https://mail.ntsad.org/index.php/resources/library/advocacy/362-us-senate-twitter-handles?format=html peg@pegdoyle.com (Peg Doyle) Advocacy Wed, 07 Dec 2016 19:24:48 -0500 Global Genes Toolkit: Bringing Rare Disease to Capitol Hill https://mail.ntsad.org/index.php/resources/library/advocacy/247-global-genes-toolkit-bringing-rare-disease-to-capitol-hill?format=html Global Genes Toolkit: Bringing Rare Disease to Capitol Hill https://mail.ntsad.org/index.php/resources/library/advocacy/247-global-genes-toolkit-bringing-rare-disease-to-capitol-hill?format=html Diana@ntsad.org (Diana) Advocacy Fri, 26 Sep 2014 10:56:03 -0400