Past issues 2013-2015 Monthly Keeping Up with NTSAD - NTSAD https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad?format=html Wed, 14 Oct 2015 11:56:04 -0400 en-GB hourly 1 Keeping Up with NTSAD - Sept/Oct 2015 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/322-keeping-up-with-ntsad-septoct-2015?format=html Keeping Up with NTSAD - Sept/Oct 2015 In this issue:

Imagine & Believe
Eight Annual Boston Benefit on Nov 5, 2015

NTSAD Funds Carrier Screening Project
A Unique Opportunity for Prevention

A Step Forward in Europe
European Partner Foundations Start a Registry

Opening Doors
Ensuring Access to Clinical Trials Act of 2015 Passes in the House and U.S. Senate

A Late Onset Story
Cary Berman publishes a book to share his story, "Born with Tay-Sachs"

]]> https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/322-keeping-up-with-ntsad-septoct-2015?format=html In this issue:

Imagine & Believe
Eight Annual Boston Benefit on Nov 5, 2015

NTSAD Funds Carrier Screening Project
A Unique Opportunity for Prevention

A Step Forward in Europe
European Partner Foundations Start a Registry

Opening Doors
Ensuring Access to Clinical Trials Act of 2015 Passes in the House and U.S. Senate

A Late Onset Story
Cary Berman publishes a book to share his story, "Born with Tay-Sachs"

]]> peg@pegdoyle.com (Peg Doyle) Past issues 2013-2015 Monthly Keeping Up with NTSAD Wed, 14 Oct 2015 11:56:04 -0400 Keeping Up with NTSAD - July 2015 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/312-keeping-up-with-ntsad-july-2015?format=html Keeping Up with NTSAD - July 2015 In this issue:

21st Century Cures Initiative Moves Ahead: Important Bill Approved by Congress!

Milestones That Matter: Medicare, Medicaid & ADA

A Family's Stay on the Cape: A Summer Wish Granted to Annabel

NTSAD's Fifth Annual Day of Hope: A Day to Rally and Raise Funds for Research!

 

]]> https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/312-keeping-up-with-ntsad-july-2015?format=html In this issue:

21st Century Cures Initiative Moves Ahead: Important Bill Approved by Congress!

Milestones That Matter: Medicare, Medicaid & ADA

A Family's Stay on the Cape: A Summer Wish Granted to Annabel

NTSAD's Fifth Annual Day of Hope: A Day to Rally and Raise Funds for Research!

 

]]> peg@pegdoyle.com (Peg Doyle) Past issues 2013-2015 Monthly Keeping Up with NTSAD Sun, 09 Aug 2015 07:00:02 -0400 Keeping Up with NTSAD - June 2015 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/306-keeping-up-with-ntsad-june-2015?format=html Keeping Up with NTSAD - June 2015 In this Issue: NTSAD 2015 Research Grants Awarded | Inspired to Take Action  | NTSAD's Annual Fund Campaign | Imagine & Believe Benefit | Jewish Genetic Disease Consortium | Cary Berman's book, "Genesis: Born with Tay-Sachs"

]]> https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/306-keeping-up-with-ntsad-june-2015?format=html In this Issue: NTSAD 2015 Research Grants Awarded | Inspired to Take Action  | NTSAD's Annual Fund Campaign | Imagine & Believe Benefit | Jewish Genetic Disease Consortium | Cary Berman's book, "Genesis: Born with Tay-Sachs"

]]> peg@pegdoyle.com (Peg Doyle) Past issues 2013-2015 Monthly Keeping Up with NTSAD Mon, 06 Jul 2015 08:59:41 -0400 Keeping Up with NTSAD - March 2015 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/290-keeping-up-with-ntsad-march-2015?format=html Keeping Up with NTSAD - March 2015 In this Issue: Everyday Life Foundation | Research Sneak Peak | Family Conference | Quilt of Hope | Creative Fundraising | Save the Dates

]]> https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/290-keeping-up-with-ntsad-march-2015?format=html In this Issue: Everyday Life Foundation | Research Sneak Peak | Family Conference | Quilt of Hope | Creative Fundraising | Save the Dates

]]> peg@pegdoyle.com (Peg Doyle) Past issues 2013-2015 Monthly Keeping Up with NTSAD Mon, 30 Mar 2015 12:02:31 -0400 Keeping Up with NTSAD - February 2015 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/289-keeping-up-with-ntsad-february-2015?format=html Keeping Up with NTSAD - February 2015 In this Issue: World Rare Disease Day | 2015 Family Conference | Family Support | Research Fund | Creative Fundraising

]]> https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/289-keeping-up-with-ntsad-february-2015?format=html In this Issue: World Rare Disease Day | 2015 Family Conference | Family Support | Research Fund | Creative Fundraising

]]> peg@pegdoyle.com (Peg Doyle) Past issues 2013-2015 Monthly Keeping Up with NTSAD Mon, 30 Mar 2015 11:59:33 -0400 Keeping Up with NTSAD - January 2015 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/281-keeping-up-with-ntsad-january-2015?format=html Keeping Up with NTSAD - January 2015 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/281-keeping-up-with-ntsad-january-2015?format=html Diana@ntsad.org (Diana) Past issues 2013-2015 Monthly Keeping Up with NTSAD Fri, 23 Jan 2015 16:10:34 -0500 Keeping Up with NTSAD - December 2014 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/282-keeping-up-with-ntsad-december-2014?format=html Keeping Up with NTSAD - December 2014 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/282-keeping-up-with-ntsad-december-2014?format=html Diana@ntsad.org (Diana) Past issues 2013-2015 Monthly Keeping Up with NTSAD Thu, 22 Jan 2015 16:13:59 -0500 Keeping Up with NTSAD - October 2014 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/264-keeping-up-with-ntsad-october-2014?format=html Keeping Up with NTSAD - October 2014 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/264-keeping-up-with-ntsad-october-2014?format=html Diana@ntsad.org (Diana) Past issues 2013-2015 Monthly Keeping Up with NTSAD Wed, 21 Jan 2015 14:37:58 -0500 Keeping Up with NTSAD - September 2014 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/266-keeping-up-with-ntsad-september-2014-1?format=html Keeping Up with NTSAD - September 2014 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/266-keeping-up-with-ntsad-september-2014-1?format=html Diana@ntsad.org (Diana) Past issues 2013-2015 Monthly Keeping Up with NTSAD Tue, 20 Jan 2015 14:39:10 -0500 Keeping Up with NTSAD - August 2014 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/267-keeping-up-with-ntsad-august-2014?format=html Keeping Up with NTSAD - August 2014 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/267-keeping-up-with-ntsad-august-2014?format=html Diana@ntsad.org (Diana) Past issues 2013-2015 Monthly Keeping Up with NTSAD Mon, 19 Jan 2015 14:39:37 -0500 Keeping Up with NTSAD - July 2014 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/268-keeping-up-with-ntsad-july-2014?format=html Keeping Up with NTSAD - July 2014 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/268-keeping-up-with-ntsad-july-2014?format=html Diana@ntsad.org (Diana) Past issues 2013-2015 Monthly Keeping Up with NTSAD Fri, 19 Dec 2014 14:40:14 -0500 Keeping Up with NTSAD Special Conference Edition April 2013 https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/58-kup-ntsad-e-special-conference-edition-4-2013?format=html Keeping Up with NTSAD Special Conference Edition April 2013 An update from "Keeping Up with NTSAD" from the spring of 2013. 

]]> https://mail.ntsad.org/index.php/resources/library/e-news/quarterly-keeping-up-with-ntsad/58-kup-ntsad-e-special-conference-edition-4-2013?format=html An update from "Keeping Up with NTSAD" from the spring of 2013. 

]]> (Anonymous) Past issues 2013-2015 Monthly Keeping Up with NTSAD Tue, 03 Jun 2014 11:09:26 -0400