Research - NTSAD Research abstracts, publications, NTSAD initiatives, and Tay Sachs Gene Therapy Consortium (TSGT)

]]> https://mail.ntsad.org/index.php/resources/library/research?format=html Wed, 16 Nov 2022 12:18:14 -0500 en-GB hourly 1 NTSAD Research Initiative Program RFP 2023 https://mail.ntsad.org/index.php/resources/library/research/initiative/613-ntsad-research-initiative-program-rfp-2023?format=html NTSAD Research Initiative Program RFP 2023 https://mail.ntsad.org/index.php/resources/library/research/initiative/613-ntsad-research-initiative-program-rfp-2023?format=html sdimond@ntsad.org (Sydnie Dimond) NTSAD Research Initiatives Wed, 16 Nov 2022 12:18:14 -0500 NTSAD Research Associate Job Post https://mail.ntsad.org/index.php/resources/library/research/612-ntsad-research-associate-job-post?format=html NTSAD Research Associate Job Post https://mail.ntsad.org/index.php/resources/library/research/612-ntsad-research-associate-job-post?format=html sdimond@ntsad.org (Sydnie Dimond) Research Tue, 18 Oct 2022 11:14:58 -0400 2022 September NTSAD Community News https://mail.ntsad.org/index.php/resources/library/research/610-2022-september-ntsad-community-news-1?format=html 2022 September NTSAD Community News September 2022

In this Issue

Imagine & Believe 2022

Thank You Sponsors

Day of Hope 2022

Myra Sack Shares Lessons from Daughter Havi

Brady Manning Honors Brother Dylan with Beyond Birdies

College Scholarships for Healthy Siblings

]]> https://mail.ntsad.org/index.php/resources/library/research/610-2022-september-ntsad-community-news-1?format=html September 2022

In this Issue

Imagine & Believe 2022

Thank You Sponsors

Day of Hope 2022

Myra Sack Shares Lessons from Daughter Havi

Brady Manning Honors Brother Dylan with Beyond Birdies

College Scholarships for Healthy Siblings

]]> sdimond@ntsad.org (Sydnie Dimond) Research Wed, 12 Oct 2022 15:15:48 -0400 2022 NTSAD Request for Proposals - Research Funding https://mail.ntsad.org/index.php/resources/library/research/583-2022-ntsad-request-for-proposals-research-funding-1?format=html 2022 NTSAD Request for Proposals - Research Funding NTSAD announces the next round of research funding via the Research Initiative Program inviting proposals from academics and researchers.

Grants will be awarded to novel research projects that involve basic research, translational studies, or clinical studies that focus on Tay-Sachs, Canavan, GM1, and Sandhoff diseases and generate strong preliminary data that will attract significant funding from other sources.

]]> https://mail.ntsad.org/index.php/resources/library/research/583-2022-ntsad-request-for-proposals-research-funding-1?format=html NTSAD announces the next round of research funding via the Research Initiative Program inviting proposals from academics and researchers.

Grants will be awarded to novel research projects that involve basic research, translational studies, or clinical studies that focus on Tay-Sachs, Canavan, GM1, and Sandhoff diseases and generate strong preliminary data that will attract significant funding from other sources.

]]> peg@pegdoyle.com (Peg Doyle) Research Tue, 11 Jan 2022 12:50:36 -0500 NTSAD RFP 2022 https://mail.ntsad.org/index.php/resources/library/research/581-ntsad-rfp-2022?format=html NTSAD RFP 2022 https://mail.ntsad.org/index.php/resources/library/research/581-ntsad-rfp-2022?format=html sdimond@ntsad.org (Sydnie Dimond) Research Fri, 07 Jan 2022 11:14:22 -0500 AC 121 21 NTSAD Website PDFS Phil R5 https://mail.ntsad.org/index.php/resources/library/research/545-ac-121-21-ntsad-website-pdfs-phil-r5?format=html AC 121 21 NTSAD Website PDFS Phil R5 https://mail.ntsad.org/index.php/resources/library/research/545-ac-121-21-ntsad-website-pdfs-phil-r5?format=html sdimond@ntsad.org (Sydnie Dimond) Research Thu, 23 Sep 2021 15:24:16 -0400 AC 121 21 NTSAD Website PDFS Vayle R5 https://mail.ntsad.org/index.php/resources/library/research/544-ac-121-21-ntsad-website-pdfs-vayle-r5?format=html AC 121 21 NTSAD Website PDFS Vayle R5 https://mail.ntsad.org/index.php/resources/library/research/544-ac-121-21-ntsad-website-pdfs-vayle-r5?format=html sdimond@ntsad.org (Sydnie Dimond) Research Thu, 23 Sep 2021 15:23:59 -0400 AC 121 21 NTSAD Website PDFS Elliott R6 https://mail.ntsad.org/index.php/resources/library/research/543-ac-121-21-ntsad-website-pdfs-elliott-r6?format=html AC 121 21 NTSAD Website PDFS Elliott R6 https://mail.ntsad.org/index.php/resources/library/research/543-ac-121-21-ntsad-website-pdfs-elliott-r6?format=html sdimond@ntsad.org (Sydnie Dimond) Research Thu, 23 Sep 2021 15:23:45 -0400 AC 121 21 NTSAD Website PDFS Embree R5 https://mail.ntsad.org/index.php/resources/library/research/542-ac-121-21-ntsad-website-pdfs-embree-r5?format=html AC 121 21 NTSAD Website PDFS Embree R5 https://mail.ntsad.org/index.php/resources/library/research/542-ac-121-21-ntsad-website-pdfs-embree-r5?format=html sdimond@ntsad.org (Sydnie Dimond) Research Thu, 23 Sep 2021 15:23:27 -0400 AC 121 21 NTSAD Website PDFS Joey R5 https://mail.ntsad.org/index.php/resources/library/research/541-ac-121-21-ntsad-website-pdfs-joey-r5?format=html AC 121 21 NTSAD Website PDFS Joey R5 https://mail.ntsad.org/index.php/resources/library/research/541-ac-121-21-ntsad-website-pdfs-joey-r5?format=html sdimond@ntsad.org (Sydnie Dimond) Research Thu, 23 Sep 2021 15:22:35 -0400 Intrabio Reports Further Detail On Positive Data From IB1001 Multinational Clinical Trial For The Treatment of GM2 Gangliosidosis https://mail.ntsad.org/index.php/resources/library/research/540-intrabio-reports-further-detail-on-positive-data-from-ib1001-multinational-clinical-trial-for-the-treatment-of-gm2-gangliosidosis?format=html Intrabio Reports Further Detail On Positive Data From IB1001 Multinational Clinical Trial For The Treatment of GM2 Gangliosidosis https://mail.ntsad.org/index.php/resources/library/research/540-intrabio-reports-further-detail-on-positive-data-from-ib1001-multinational-clinical-trial-for-the-treatment-of-gm2-gangliosidosis?format=html Diana@ntsad.org (Diana) Research Tue, 14 Sep 2021 15:10:10 -0400 AC 121 21 NTSAD Website PDFS Joey R4 https://mail.ntsad.org/index.php/resources/library/research/make-the-rare-dx/538-ac-121-21-ntsad-website-pdfs-joey-r4?format=html AC 121 21 NTSAD Website PDFS Joey R4 https://mail.ntsad.org/index.php/resources/library/research/make-the-rare-dx/538-ac-121-21-ntsad-website-pdfs-joey-r4?format=html Diana@ntsad.org (Diana) Make the Rare Dx Wed, 01 Sep 2021 12:24:38 -0400 AC 121 21 NTSAD Website PDFS Vayle R4 https://mail.ntsad.org/index.php/resources/library/research/make-the-rare-dx/537-ac-121-21-ntsad-website-pdfs-vayle-r4?format=html AC 121 21 NTSAD Website PDFS Vayle R4 https://mail.ntsad.org/index.php/resources/library/research/make-the-rare-dx/537-ac-121-21-ntsad-website-pdfs-vayle-r4?format=html Diana@ntsad.org (Diana) Make the Rare Dx Wed, 01 Sep 2021 11:41:56 -0400 AC 121 21 NTSAD Website PDFS Embree R4 https://mail.ntsad.org/index.php/resources/library/research/make-the-rare-dx/535-ac-121-21-ntsad-website-pdfs-embree-r4?format=html AC 121 21 NTSAD Website PDFS Embree R4 https://mail.ntsad.org/index.php/resources/library/research/make-the-rare-dx/535-ac-121-21-ntsad-website-pdfs-embree-r4?format=html Diana@ntsad.org (Diana) Make the Rare Dx Wed, 01 Sep 2021 11:41:55 -0400 AC 121 21 NTSAD Website PDFS Phil R4 https://mail.ntsad.org/index.php/resources/library/research/make-the-rare-dx/536-ac-121-21-ntsad-website-pdfs-phil-r4?format=html AC 121 21 NTSAD Website PDFS Phil R4 https://mail.ntsad.org/index.php/resources/library/research/make-the-rare-dx/536-ac-121-21-ntsad-website-pdfs-phil-r4?format=html Diana@ntsad.org (Diana) Make the Rare Dx Wed, 01 Sep 2021 11:41:55 -0400 AC 121 21 NTSAD Website PDFS Elliott R5 https://mail.ntsad.org/index.php/resources/library/research/make-the-rare-dx/534-ac-121-21-ntsad-website-pdfs-elliott-r5?format=html AC 121 21 NTSAD Website PDFS Elliott R5 https://mail.ntsad.org/index.php/resources/library/research/make-the-rare-dx/534-ac-121-21-ntsad-website-pdfs-elliott-r5?format=html Diana@ntsad.org (Diana) Make the Rare Dx Wed, 01 Sep 2021 11:41:53 -0400 AXO AAV GM1 Trial Brochure Jun2021 https://mail.ntsad.org/index.php/resources/library/research/533-axo-aav-gm1-trial-brochure-jun2021?format=html AXO AAV GM1 Trial Brochure Jun2021 https://mail.ntsad.org/index.php/resources/library/research/533-axo-aav-gm1-trial-brochure-jun2021?format=html Diana@ntsad.org (Diana) Research Thu, 05 Aug 2021 13:36:57 -0400 GM2 Queens Recrutiment REB Submission FINAL Brochure https://mail.ntsad.org/index.php/resources/library/research/532-gm2-queens-recrutiment-reb-submission-final-brochure?format=html GM2 Queens Recrutiment REB Submission FINAL Brochure https://mail.ntsad.org/index.php/resources/library/research/532-gm2-queens-recrutiment-reb-submission-final-brochure?format=html Diana@ntsad.org (Diana) Research Tue, 27 Jul 2021 18:08:51 -0400 AXO AAV GM2 Trial Brochure Jun2021 https://mail.ntsad.org/index.php/resources/library/research/531-axo-aav-gm2-trial-brochure-jun2021?format=html AXO AAV GM2 Trial Brochure Jun2021 https://mail.ntsad.org/index.php/resources/library/research/531-axo-aav-gm2-trial-brochure-jun2021?format=html Diana@ntsad.org (Diana) Research Tue, 27 Jul 2021 18:08:50 -0400 TSHA 101 Community Letter https://mail.ntsad.org/index.php/resources/library/research/526-tsha-101-community-letter?format=html TSHA 101 Community Letter https://mail.ntsad.org/index.php/resources/library/research/526-tsha-101-community-letter?format=html Diana@ntsad.org (Diana) Research Tue, 18 May 2021 11:22:49 -0400