The Annual Family Conference is a highlight of the year for NTSAD’s families.
National Tay-Sachs & Allied Diseases Association (NTSAD) is the oldest patient advocacy organization in the country, serving families and individuals coping with a diagnosis of Tay-Sachs, Canavan, GM1 Gangliosidosis, and Sandhoff diseases. For 65 years, NTSAD has led the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.
NTSAD’s Annual Family Conference
Since 1978, NTSAD has presented the Annual Family Conference to provide families a safe space to support and learn from one another, to gain knowledge directly from researchers and industry members working on potential therapies, and to contribute and share their experiences to further enhance the development of clinical trials. Highlights of the 2021 NTSAD Annual Family Conference, hosted virtually, include:
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More than 500 people registered.
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140 families attended.
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26 countries were represented.
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Largest Research Day ever with 30 presenting researchers and industry members.
As long as it is safe to do so, we plan to gather in person for our 2022 Annual Family Conference. It has been three years since we have hosted an in-person conference. Highlights from the 2019 in-person conference include:
- More than 300 people in attendance.
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Approximately 100 families participated.
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33 conference sessions were held.
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55 families received a Helping Hand Grant to cover some expenses, making attendance
possible.
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Camp Snuggle and Camp Active were favorite one-of-a-kind experiences for affected children.
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The Quiet Reflection and Commemoration ceremonies honored loved ones in personal and meaningful ways.
How does your sponsorship make a difference?
The NTSAD Annual Family Conference is made possible through generous support from individuals, families, foundations, and industry partners. Sponsors of the Conference provide families and individuals a unique experience that includes:
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Symptom and health management.
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Community meals, Welcome Reception, Awards Luncheon, and Celebratory Dinner.
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Family photography sessions with professional photographers.
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Research Day sessions with disease-specific breakout groups.
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Camp Snuggle and Camp Active for affected children.
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Camp Sunshine and Youth Group for healthy siblings.
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And much more that makes the weekend a fulfilling and memorable experience for families.
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Please contact Susan Keliher, Director of Development and Communications via email This email address is being protected from spambots. You need JavaScript enabled to view it. or by phone (617) 277-4463 to receive a sponsorship package. |
pdf 2022 Sponsorship Levels and Form (974 KB)
