Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Day of Hope

Bringing Communities Together

Each year families, friends, and colleagues come together for a "Day of Hope" and host an event to raise awareness and critical funds for research. This year's Day of Hope is September 17, 2022, and families are hosting walks, runs, dance parties, pancake breakfasts, trivia nights, golf tournaments, Facebook fundraisers, t-shirt campaigns, and more---all summer long in support of every NTSAD family. 

Funds raised go toward finding effective treatments and NTSAD's Research Initiative.

Since the first Day of Hope held in September 2011, more than $600,000 has been raised.

Interested in hosting a Day of Hope event? Email Becky {This email address is being protected from spambots. You need JavaScript enabled to view it.]

Walk a Mile for Hope on Saturday, September 17 in your neighborhood or at your gym, school, place of worship or work, etc. Invite your friends, family, and colleagues to join you while or walk, or maybe dance, roll, or stroll a mile. Mark your Mile for Hope, post a photo or video on Facebook, tag the NTSAD Facebook page, and use #NTSADDOH22.

Join Rare Families and Friends for a virtual Day of Hope Afterparty on September 17 at 6 p.m. ET/5 p.m. CT/3p.m. PT. All are welcome to connect with families, put your feet up, and raise a glass to our shared hope for future successful treatments. Register for virtual Day of Hope Afterparty!

Check out the Day of Hope Guide

Create your own  pdf NTSAD Day of Hope Fundraising Page (241 KB) !

Purchase a Day of Hope t-shirt. 

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