Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

NTSAD’s 43rd Annual Family Conference | Recordings

Welcome and Opening to Virtual Family Conference


Advocacy: Being an Advocate & Sharing Your Story
with Stephanie Fischer, Abigail Rogers, and Bill Berry


Research Day Kick-off including panel discussion about patient data
with Kaitin Nichols, PhD, AllStripes, and Cynthia Tifft, MD, PhD, NHGRI

NTSAD Families Advance Research: Why Participation Matters

NTSAD Task Force Presentations


Research Breakout Sessions in links below


Commemoration Ceremony: Poems and Slideshow


Thank you for being a vital part of our community. Yesterday. Today. And for a better tomorrow. 

Virtual Conference

View the NTSAD Annual Family Conference Research Exhibit Hall

Please contact Becky Benson, Conference and Family Services Coordinator here with any questions or concerns that are conference related.

2021 Conference Sponsors

COURAGE
HOPE
Laura and Simeon Schindelman
INSPIRATION
DETERMINATION
COMMUNITY
Bonnie and Barry Davis in loving memory of Adam Davis 
The Evan Lee Ungerleider Fund
NTSAD New York Area Fund 
*sponsors as of 4/15/21

2021 Conference Research Breakouts

  • Canavan

    Watch the presentations from the 2021 NTSAD Family Conference research breakout session for Canavan disease. Read More
  • GM1 Gangliosidosis

    Watch the presentations from the 2021 NTSAD Family Conference research breakout session for GM1 Gangliosidosis. Read More
  • Infantile/Juvenile GM2

    Watch the presentations from the 2021 NTSAD Family Conference research breakout session for GM2 Gangliosidosis. Read More
  • Late Onset

    Watch the presentations from the 2021 NTSAD Family Conference research breakout session for Late Onset GM2. Read More
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