Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Benton's Family Assistance Fund



Ian and Marie Auerbach established Benton's Family Assistance Fund within NTSAD to honor their son, Benton, who passed away from Tay-Sachs in January, 2012, at the age of 3. They started this fund to provide financial assistance to families and affected individuals to purchase items and services that promote comfort, ease, and quality of life for their loved ones. Similar to Helping Hand Grants, grants from Benton's Family Assistance Fund will aid families and individuals that are otherwise unable to afford these very helpful services.





  • NTSAD Peer Support Group members
  • Family member taking care of a child
  • Affected adults & their caregivers 


Examples of what's covered in the Fund:

  • strollers
  • equipment that helps increase comfort (e.g,. positioning equipment for children) but isn't covered by medical insurance
  • durable medical equipment co-pay
  • short-term respite or nursing care
  • complimentary medicine, e.g., occupational therapy, Eastern medicine approaches


Guideline for amount requested: The maximum request should be $500 per year for each family. However, the amount ultimately granted and the item approved will be at the discretion of the grant review committee. For equipment requests, or shipment of equipment, it is required that these items are well-cared for, and, if and when the time comes, the equipment if forwarded to another family in need. 


NOTE: International shipment from the United States is more expensive due to customs fees and can be a lengthy process. 


How to apply


To apply for a grant, please download and submit your request document here (69 KB) . Once you are awarded the grant, you will be asked to submit documentation for the item/service per NTSAD's audit requirements.


Please send your request to:


NTSAD - Benton's Family Assistance Fund

2001 Beacon Street, Suite 204

Boston, MA 02135

This email address is being protected from spambots. You need JavaScript enabled to view it.

f. (617) 277-0134


Donate to the Benton Family fund

Donate by Credit Card

Donate through PayPal

Donations by Mail or Phone:
(617) 277-4463
Checks payable to NTSAD
2001 Beacon Street, Suite 204
Boston, MA 02135

To set up annual recurring donations, please contact us at (617) 277-4463.

Annual Fund

Make a one-time gift, or a recurring, monthly gift to NTSAD's annual fund

Additional Giving

Mail or Phone Donations

(617) 277-4463Your check can be made payable to NTSAD2001 Beacon Street, Suite 204Boston, MA 02135.

Matching Gifts

You can double your impact through your employer's matching gift program. Federal employees may use NTSAD's CFC #11528

A Gift of Stock

You can make a gift of stock. Contact Susan Keliher, Director of Development and Communications (617) 277-4463.

Estate Gifts

Make a legacy gift and include NTSAD in your estate planning. Contact Susan Keliher, Director of Development and Communications(617) 277-4463.

Thank you!