Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Emily Lynn Jones Memorial Fund

The Emily Lynn Jones Memorial Fund is a restricted fund within NTSAD. 

It was established by Emily's grandparents, Barbara and Robert Porter. Emily passed away in 2001 from Tay-Sachs.

This fund has generously supported and continues to support NTSAD's family services program including the annual family conference.



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