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Tay-Sachs, Canavan, GM1 and Sandhoff diseases

2019 Imagine & Believe

2019 - A Spectacular Evening

Together, with our friends, we honored Dr. Cynthia Tifft at the October 30, 2019 Imagine and Believe evening at the Sonesta Hotel in Cambridge. Dr. Tifft is Deputy Clinical Director of the National Human Genome Research  Institute/NIH. We imagined and believed and we raised over $140,000!

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Wednesday, October 30, 2019

6-9 pm
Royal Sonesta Hotel 
40 Edwin Land Blvd
Cambridge, MA
Dinner | Auction | Program

Join our generous sponsors and attendees here to support NTSAD. 

If you cannot make it to the event but would like to make a gift to support NTSAD, please click here.
For 62 years, NTSAD has been bringing together leaders in the rare disease community to share, learn, network, and collaborate with families, researchers, clinicians and friends. NTSAD’s annual Imagine & Believe is a vital part of this effort.

Through Imagine & Believe we:

  • Connect affected families with leaders in research, biotech, medicine, and clinical pursuits with a goal of learning from the past, discussing the state of rare diseases, and building partnerships for the future
  • Raise money to fund research, promote and steward these partnerships, and serve our families.
  • Bring toghether families, Board members, and attendees who are very well networked in the Boston biotech community, especially in rare diseases. Among them are industry partners, researchers, and clinicians. 

Join us in honoring Cynthia Tifft, MD, PhD, Deputy Clinical Director of the National Human Genome Research  Institute/NIH. A trusted partner and advisor to NTSAD since 1998, Dr. Cynthia Tifft is an accomplished clinician  and scientist, and an extraordinary advocate for the  rare disease community.  Always prioritizing the  children and adults for whom she cares, Dr. Tifft has  led an almost 20-year long natural history study for  storage disorders laying essential groundwork for  clinical trials. Dr. Tifft is the Principal Investigator for  a newly opened GM1 gangliosidosis Type II gene therapy clinical trial, a career milestone.

Silent Auction

Take a peek at our Silent Auction Wish List offerings here to purchase and contribute an item!

Sponsorship

Join our generous sponsors here to support NTSAD.

Donate 

If you cannot make it to the event but would like to make a gift to support NTSAD, please click here.

 

 

 

 

 

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