Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Imagine & Believe 2021

Thank you for Imagining & Believing with NTSAD. Because of you, we celebrate our hard work which has led to NINE clinical trials—one completed, and eight active trials for Tay-Sachs, Canavan, GM1, and Sandhoff diseases.  NTSAD remains indebted to patients and their families, researchers, clinicians, industry, donors and rare allies for helping us to reach this monumental milestone.  
On October 28, more than 250 members of our Community gathered virtually raising $115,000 for NTSAD’s Family Services. Thank you to our sponsors and supporters for making this possible. 
We also must acknowledge Myra Sack and Matt Goldstein, parents of Havi, Renny and Eric Drinks, parents of Shoshanna, Karen and Jeff Arbetter, parents of Jason and Josh, Dawn Mariano, parent of Vayle, and Jessica Lindqvist and Niclas Flysjö, parents of Hampus, Julia, and Isabella for sharing their stories, the unwavering love for their children, and hope for the future. Thank you. Your efforts raise awareness, and more importantly, support families like yours.
At the event, we honored Sue Kahn, NTSAD’s Executive Director for the past 14 years. In case you missed the event or the many tributes to Sue Kahn, you can watch it now. Thank you for your extraordinary leadership! We will miss you, Sue. It’s not too late to make a gift in honor of Sue!  

Make a gift in honor of Sue Kahn.

Our work continues, and the next leader of NTSAD, Kathy Flynn has begun her tenure at NTSAD. Kathy is in the office, and she is working with Sue as well as the NTSAD Family Services team—Diana Pangonis and Becky Benson, Valerie Greger, NTSAD’s new Research Director, and Susan Keliher and Sydnie Dimond, the Development and Communications Team.   

Keep on Imagining & Believing! 

Watch the Videos from the Imagine & Believe Virtual Event


    Full Event  

   Family Video   

Tribute to Executive Director Sue Kahn

How to Support

Sponsor Imagine & Believe


For more information or questions, please email skeliher@ntsad.org.


2021 Sponsors


Aspa Therapeutics, a BridgeBio Company


Taysha Gene Therapies


Gerald Cox MD, PhD* 

Mathew Forbes Romer Foundation*

Passage Bio

Sio Gene Therapies 


Amicus Therapeutics, Inc.


Blu Genes Foundation


Michael Gladstone


Sanofi Genzyme

UMass Chan Medical School


Aaron's Fund*

Acom Healthcare*

Adelman Associates  


Larry Blumberg and Robin Lynn

Gain Therapeutics

Jamie Ring Advocacy Consulting, LLC* 

Staci Kallish* and Chris Beer 

Amy and Jonathan Katz* 

Joan and Tim Keutzer 

LogicBio Therapeutics

Blyth and Charie Lord*


Propel Careers* 

Curt Scribner 

Amy Speak*

*NTSAD Board Member