Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Gottlieb Sibling Scholarships

The Jeffrey Alan Gottlieb and Stanley N. Gottlieb Memorial Scholarship Funds will make monies available to college-attending healthy siblings of those who are or were affected by Tay-Sachs, Sandhoff, Canavan or an allied disease.

After experiencing both love and loss, Judy Gottlieb has chosen to move forward in her life by showing love. From caring and concern for her own family, she has decided to express concern for other children by generously contributing to their futures.  In May 2005, this mother and grandmother from Somerset, NJ, established two separate memorial college funds at NTSAD to honor her youngest son, Jeffrey Alan Gottlieb, who succumbed to Tay-Sachs in 1975, and her husband, Stanley N. Gottlieb, who passed away in 2001.

It is Judy’s intent that the monies be distributed “for use in their college education, i.e., tuition, books, room and board.”

Applications for the 2022-2023 school year will be available mid-2022.

2021 Sibling Scholarship Recipients

  • Matt Kennedy

    Matt Kennedy

    Matthew Kennedy, brother of Caitlin, who had Sandhoff disease, is a first-year student attending Schreiner University. Matthew is studying pre-nursing, in honor of his sister and the many nurses who cared for her. “Through helping other people when they are ill and extending help to their family, I can return the support and kindness offered to Caitlin and my family through our difficult journey.”
  • Gavin Levine

    Gavin Levine

    Gavin Levine, brother of Lila, who had Tay-Sachs disease, is a freshman in the Honors Program at Ohio State University. Gavin is pursuing a degree in biology and his interests include biotechnology and research, which he hopes to use to prevent others from losing a child. “I envision I will use my study of biology to honor Lila’s life by working to give those like her a chance to live.”
  • Zach Richards

    Zach Richards

    Zachary Richards, brother of Cooper, who had GM1 disease, is inspired by his brother and the nurses who cared for him. Zachary is studying nursing at Curry College. “My dream is to become a nurse, so I can give back and work with children that have genetic disorders like Cooper...My brother lived a life that was important.”
  • Aaron Ronaldson

    Aaron Ronaldson

    Aaron Ronaldson, big brother of Mollie and Madelyn who both have Juvenile Sandhoff disease, is a freshman at Liberty University, majoring in mechanical engineering. "I hope to find new ways to design a lighter weight, more compact wheelchair for my sisters and others like them. I will always be thinking of them as I learn.”
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