The time following a diagnosis is often overwhelming, scary and wrought with many questions and emotions for the whole family. Below is a series of curated newsletters to help you throughout the first year and beyond.
Resources for coping with a life altering diagnosis and finding your philosophy of care.
Download pdf here (374 KB) .
Tips for getting organized, obtaining a Medicaid waiver, and coping with the emotional effects of serious illness.
Download pdf here (364 KB) .
The value of support and connection. Families share what they wish they had known sooner.
Download pdf here (4.50 MB) .
Navigating the world of medical equipment and coping with loss of expectations.
Download pdf here (3.01 MB) .
Information on hospice, palliative care, and finding your voice.
Download pdf here (3.69 MB) .
Resources for seizure management, journaling through anticipatory grief and strategies for memory making.
Download pdf here (3.10 MB) .
Information on respiratory care, and notes on staying present with others in your life.
Download pdf here (2.27 MB) .
The importance of ongoing physical therapy, care for caregivers, and an adult sibling perspective on identity.
Download pdf here (4.87 MB) .
A family shares the value of community and resources provided on understanding a DNR form.
Download pdf here (4.37 MB) .
Advanced planning for final arrangements, meditations and breathwork resources, and a grandparent perspective piece.
Download pdf here (4.45 MB) .
Advice for navigating ongoing triggers and a glimpse into what end of life care really looks like.
Download pdf here (4.78 MB) .
Guide to navigating and processing enduring trauma as well as a wrap up note from the Family Services Team.
Download pdf here (3.20 MB) .