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Tay-Sachs, Canavan, GM1 and Sandhoff diseases

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Gottlieb Sibling Scholarships

The Jeffrey Alan Gottlieb and Stanley N. Gottlieb Memorial Scholarship Funds will make monies available to college-attending healthy siblings of those who are or were affected by Tay-Sachs, Sandhoff, Canavan or an allied disease.

After experiencing both love and loss, Judy Gottlieb has chosen to move forward in her life by showing love. From caring and concern for her own family, she has decided to express concern for other children by generously contributing to their futures.  In May 2005, this mother and grandmother from Somerset, NJ, established two separate memorial college funds at NTSAD to honor her youngest son, Jeffrey Alan Gottlieb, who succumbed to Tay-Sachs in 1975, and her husband, Stanley N. Gottlieb, who passed away in 2001.

It is Judy’s intent that the monies be distributed “for use in their college education, i.e., tuition, books, room and board.”

Applications for the 2022-2023 school year will be available mid-2022.

Parenting Film Thank You

Thank you for ordering the NTSAD film Parenting a Child with Life-Limiting Illness.
Please allow two weeks for delivery.

We hope you will consider making a gift to NTSAD to support this and other Family Support programs.

If ever there is a tomorrow when we're not together - there is something you must always remember. You are braver than you believe, stronger than you seem and smarter than you think. But the most important thing is, even if we're apart - ll always be with you.      ~ Christopher Robin to Winnie-the-Pooh

Helping Hand Tool-Kit

Helping Hand Tool-Kit
Our goal is to help as many families as possible attend the Annual Family Conference. To achieve this goal we work hard to raise the needed funds and ask families to explore the resources below. Together, we can achieve our goals and every family who wants to be at the conference will be able to attend.

Selling Helping Hand Raffles

  • Personalized flyers to post online and in community
  • Facebook badge (profile picture) to promote sales
  • Connect with experienced raffle seller for mentorship and guidance

Contact Kim (details on the right) to request personalized flyers, Facebook badge or raffle mentor.

Click   document here (14 KB)  to download more selling tips.

Raise Your Own Helping Hand
YouCaring is a free fundraising website created for individual wanting to raise funds for a variety of needs, including attending our Annual Family Conference! In just 3 steps, easily create your own site to raise the funds you need to get to the conference. It is truly free, the site does not charge you or the donors.

Explore Your State Resources
Many states offer grant programs directly to families to help with the cost of attending a conference related to the disease impacting the family. These are often difficult to find. Contact the Family Voices chapter in your state to inquire. Family Voices is an amazing organization connecting medically complicated families in each state.

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