Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Get Involved

Get Involved

Awareness, prevention and fundraising can provide a brighter future for families and individuals affected by rare genetic diseases.

Donate Today


Join the cause by attending or organizing an event to help raise awareness and funds.


NTSAD relies on volunteers to help spread the word and raise awareness.

With the exception of our small staff, everyone involved with NTSAD, including its Board of Directors and Committee members, generously give their time, energy and talents to NTSAD for free so we can spend less on administrative costs and more on raising awareness and finding a cure.

Come join our growing team of passionate volunteers!

Ways You Can Help!

Join one of NTSAD's committees and have a voice in what the organization does next.

Annual Family Conference Committee

Support the Conference VP and Member Services Director while planning the Annual Family Conference.

Development Committee

Share your ideas on how NTSAD can succeed in raising funds for research, family support and the overall health of the organization.

Family Services Committee

Be there for families and individuals when they come to NTSAD for guidance and support.

Research Initiative Committee

Work with a stellar group of members and get involved with the exciting progress on the research front.

If you want to contribute in other ways and volunteer your time and expertise, contact the national office at (617) 277-4463.

Raise Awareness

There is always an opportunity to raise awareness about these diseases and NTSAD has the tools to help you.

Share NTSAD's "Be Rare Aware" Disease Infographics

Educate friends and family by sharing NTSAD's "Be Rare Aware" infographics either on social media or by handing out printed copies. 

    pdf Tay Sachs Infographic (3.67 MB)       pdf Canavan Infographic (3.72 MB)       pdf GM1 Infographic (3.72 MB)          pdf Sandhoff Infographic (3.72 MB)

Talk to a local group

Many synagogues, schools and even local hospitals would work with you to organize an educational forum. NTSAD can connect you to resources to help you with presenting critical information to attendees.

Connect with Your Local Media

Telling your own personal story can be effective in raising awareness. Call the national office for help with media contact.

For more help with raising awareness, contact the national office at (617) 277-4463.

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