Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

2019 Day of Hope Success!

Through the efforts of families and friends, over $60,000 was raised during the 2019 Day of Hope, bringing our overall Day of Hope total to over $500,000 since 2011!

This annual event is a time for our rare and mighty community to come together to make a difference and show that there is always hope.

All proceeds go to the research that NTSAD funds including the work leading to clinical trials. We are closer than ever and together we can be sure to be ready!

Thank you to everyone having or have had 2019 Day of Hope Events! (as of August 30, 2019)

The Alexander Family & Friends
Celebrating Embree Giving Page

Ashley Bayer
Jase's Ride of Hope on 9/14

Becky Benson, Family & Friends
Questions for a Cause Trivia Night on 10/14

Karin Croft
Mahjongg Tournament & Silent Auction on 9/14

Ruth Feldman
Walk/Bike in Maine

Kelsey French
Kaydence’s T-Shirt Campaign

Barry & Sarah Gamzon
T-Shirt Campaign

The Gropp Family & Friends
Beanbag Tournament - Thank you for another fantastic year!

The Jackson Family & Friends
Jessie's Ride of Hope on 9/14

Liz Siciliano
Brooke’s T-Shirt Campaign




Carla Steckman
One Foot in Front of the Other
T-shirt campaign

The Stidham Family & Friends
Eli's Cruise for a Cure on 9/21

The Urban Family & Friends
Bloops for Brooke Tournament
Thank you for another amazing year!

Beth VanSkoyck
T-Shirt Campaign for Brooke

The Kemp Family & Friends
Dos Coyotes Border Cafe “Dine and Donate” on 9/9

Phil Rhodes
Fishing Charter Raffle

The Ronaldson Family & Friends
Seven Days of Hope up to 9/21

The Wivell Family & Friends
Legacy for Lacie 17th Annual Walk