Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases


Member Resource Directory

NTSAD publishes a Peer Support Group Resource Directory for it's members. This 88 page document is a wealth of information. If you are unable to open this document, please contact our office for a printed version to be mailed.

Peer Support Group Resource Directory, 2011 (MS WORD format)

Table of Contents

Helpful Resources

NTSAD Educational Materials

Online Bereavement Resources

Converence Affected Childcare Nurses

Peer Support Group Members

U.S. Listings
Canadian Listings
International Listings

Directory sorted by Diagnosis

Directory sorted by State/Country

Welcome NTSAD Members!


Membership Benefits

  • Help you understand the diagnosis & symptom management options
  • Keep you updated on the latest research developments
  • And most importantly, connect you with other families that truly understand!

First Year Free

The Annual Membership Contribution is waived for the first year to give new families a chance to ‘test drive’ the organization. We ask for an annual membership contribution of $50 but will accept a donation of any amount or waive the dues entirely. Our top priority is being there for all affected families, regardless of ability to contribute.


All your information is kept strictly confidential. We will only share your information with other members of the Peer Support Group.

We are like a family – not one you’d ever choose to be part of but one that is there when needed most.

Join Today

To join, complete the online alt Request Form.