Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

  • Donate Today

    Donate Today

    Support families, advance research, and give to NTSAD.

  • Newly Diagnosed?

    Newly Diagnosed?

    Support and mentorship is here as you cope with a diagnosis of Canavan, GM1, Sandhoff or Tay-Sachs.

  • Clinical Trials

    Clinical Trials

    Learn more about the clinical trials in development that we hope lead to effective therapies.

  • NTSAD's New Website

    NTSAD's New Website

    Check out a sneak peek into NTSAD's new website.

  • Annual Family Conference 2023

    Annual Family Conference 2023

    Join the NTSAD Community from June 1-4, 2023 in Reston, Virginia.
  • We Care for Rare

    We Care for Rare

    Meet Rare Families. Read More
  • Be an advocate!

    Be an advocate!

    Your voice is important and can have a profound impact on legislation that affects our small but mighty rare disease community.

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Latest News

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Families of the NTSAD Peer Support Group have provided photographs and web site links in honor of their loved ones who has been diagnosed with an allied disease. If you would like to contribute a photograph and link, please contact Diana Pangonis, This email address is being protected from spambots. You need JavaScript enabled to view it..

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