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Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Tay-Sachs, Sandhoff and GM1 Late Onset Support

Support for Families

Families dealing with adult Late Onset Tay-Sachs, Sandhoff or GM1 gangliosidosis disease, known as Lysosomal Storage Diseases, have common symptoms and common approaches for managing the symptoms.  Read through this section to learn about various symptom management techniques, where to find help, and how to cope.

Newly Diagnosed

Communication Skills

Swallowing Difficulties



Mental Health


Technology Resources

Living with Late Onset Guide 

The new resource guide "Living with Late Onset Tay-Sachs, Sandhoff and GM1" is   pdf now available for you (3.43 MB)  to share with your family, friends, doctors, therapists and caregivers.