Brodryck's Legacy of Hope
Last Updated: Tuesday, 19 November 2019 12:14
Over the past 6 years, we have been so Blessed with the kindness of so many people who have donated their hard earned money to help us fund research to one day find treatment and a possible cure for GM1 research.
With four Incredible Bean Bag Tournaments (Brodryck’s Bean Bag Tourney, The Beaver Den Winter Classic, and the BC Mid-Summer Bonanza) we have raised close to $20,000 in 6 years!!!!!! We thank everyone so much for their hard work, kindness, and dedication to our Sweet Brodryck’s Legacy. It means the world to us that so many people have taken the time to remember and honour our Brodryck. This money goes directly into research with hopes that we can find that breakthrough. Hope is on the Horizon that a cure will be found and no other child will die from this dreaded disease.
You can support our efforts to raise funds for research by make a gift here.
Ride Along with Rex
Last Updated: Tuesday, 14 January 2020 11:45
Rex Lairdsen Franzen
October 10, 2014 - October 22, 2016
Rex's life would seem too short to many, but those who were touched by him understood that the quality of his existence far exceed the quantity of his time on earth. His gentle smile could melt the hearts of those around him and his giggle could make anyone laugh out loud with him. Although he never spoke a word, his voice and thoughts could always be heard. He possessed amazing strength even though his little body was made weak by Sandhoff Disease.
With his courage, he led us to believe that each day is a blessing and an opportunity to create lasting memories. He could spend hours rocking in his favorite chair while cuddling close to those he loved so much. He enjoyed music, the wind in his hair and the rustling of leaves in the trees. He loved to be massaged with coconut oil and the sound of his Daddy's voice. He loved to be surrounded by his brothers playing and to be snuggled close to his mamma while nursing.
Rex lived and died without sin and truly wanted nothing more in his short life than to be loved and caressed. With his passing, we want to remind others that his life is one to be celebrated and remembered. Please help us honor his memory by learning more about his fatal genetic disease, Sandhoff, and spreading awareness in your communities. Donating to the National Tay-Sachs & Allied Diseases Association, a not-for-profit organization, will help fund research so that no other family has to know the pain of losing their child to these genetic diseases.
With grateful hearts,
Craig, Amber, Erick, Seth, Piper and Gus Franzen
P.S. If you have performed a random act of kindness in memory of Rex, please share your kindness moment on his Facebook Page - Ride Along with Rex - by clicking on this link.
Donate by Credit Card
Donate via PayPal