Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases


Imagine & Believe 2020

Virtual Event- Tuesday, November 10th 4:30-5:30 p.m. EST.

Thank you for Imagining and Believing with NTSAD! We had more than 200 people join us on November 10, and we raised more than $100,000 to sustain NTSAD’s ongoing programs and services for families.

Watch the event, and Imagine & Believe videos Here.


Join NTSAD on November 10th where we will share advances in research and honor patients and families at NTSAD’s annual Imagine & Believe event. Several families will share their stories, experiences, and hopes for the future.

“Thirteen years ago, I joined NTSAD to drive research. Today, we have at least 10 companies working on drug development with several clinical trials underway and an equal number of academic institutions and companies working on diagnostics, natural history studies, as well as other clinical development tools. We can truly imagine and believe there will be effective treatments for patients and families in the very, near future. This year at Imagine & Believe, we will highlight our powerful community, particularly the families we serve. After all, supporting families is the center of everything we do.” -- Sue Kahn, NTSAD executive director.

The event raises vital funds for supportive services for individuals and families affected by Tay-Sachs, Canavan, GM1, and Sandhoff diseases.  

To sponsor the event or for more information, please contact Susan Keliher, Director of Development and Communications at This email address is being protected from spambots. You need JavaScript enabled to view it..  

Free to attend.


DONATE to Imagine & Believe and thank you for supporting NTSAD's family services!


Past Days of Hope

NTSAD Family Events

NTSAD funds research and supports families thanks to the generosity and hard work of families and their communities who channel their energy into raising awareness and funds for NTSAD. Events range in scale from local walks to lemonade stands. NTSAD provides support, swag and individual web pages for all events. To organize an event or if you are interested in attending one, please contact NTSAD at (617) 277-4463.


Event Resources

We Want to Make Your Event a Success!

Thank you for raising funds for the NTSAD family support and/or research initiative. There are many ways the NTSAD office can help you with any event you want to plan; from coming up with an idea to a suggested timeline to the goodies we can send you! Last year we launched giving pages for every event that can be customized and shared with your family and friends! Contact Diana at This email address is being protected from spambots. You need JavaScript enabled to view it. if you want to talk about how you can customize your page!

Looking for an idea?

  • Hold a backyard BBQ for friends, neighbors and colleagues.
  • Have a wine and cheese party and share your story.
  • Host an awareness event at a local fair/school/synagogue.
  • Host a tournament at your local school, roller-skating rink or bowling alley.
  • Organize a community walk at a local park.
  • Go formal. Organize a dinner/dance with a silent auction.

Any idea, big or small, helps and has an impact on the work NTSAD does every day.

Honoring Your Loved One through Action

A manual outlining the many ways in which you can help will be available here shortly for download. In the meantime, feel free to request it from the office. Contact Us

Day of Hope - Event Timeline

We have a suggested timeline available that can make the process of planning any kind of event less daunting. It is merely a guideline to help you as you think about ways to observe the Third Annual Day of Hope. Remember - any idea is a great idea, and any day is just as important. There are many events held on different days in different months, and their efforts still count as part of the overall mission to fund research.    pdf Download the PDF here. (1.09 MB)

Media Tips and Samples

Once you've made your plans from setting the date to the when and where, you may want to reach out to your local media. Sharing your story about why the Day of Hope is important can be impactful and raise even more awareness about our small but mighty group of families! We have a document Press Release template for you to download (599 KB)  as well as someone on our Communications Committee who can help get it distributed. Contact Diana at This email address is being protected from spambots. You need JavaScript enabled to view it. or (617) 277-4463 for more information.


You can place your order or shop for items here

Other items include coin cans, newsletters and magnets (limited supply) to send for your event. 

Call the Office

The national office can help with the following event planning tasks:

  • Brainstorming concepts
  • Designing and customizing flyers
  • Customizing information brochures with your event info
  • Offering templates from solicitations to thank you letters
  • Helping with thank you letters to supporters
  • Creating your own giving page to share with family and friends