Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

  • Donate Today

    Donate Today

    Support families, advance research, and give to NTSAD.

  • Newly Diagnosed?

    Newly Diagnosed?

    Support and mentorship is here as you cope with a diagnosis of Canavan, GM1, Sandhoff or Tay-Sachs.

  • Clinical Trials

    Clinical Trials

    Learn more about the clinical trials in development that we hope lead to effective therapies.

  • NTSAD's New Website

    NTSAD's New Website

    Check out a sneak peek into NTSAD's new website.

  • Annual Family Conference 2023

    Annual Family Conference 2023

    Join the NTSAD Community from June 1-4, 2023 in Reston, Virginia.
  • We Care for Rare

    We Care for Rare

    Meet Rare Families. Read More
  • Be an advocate!

    Be an advocate!

    Your voice is important and can have a profound impact on legislation that affects our small but mighty rare disease community.

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Latest News

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Are we close to a cure?

NTSAD is dedicated to finding a cure for Tay-Sachs, Sandhoff, Canavan, GM1 and all the related diseases. Founded over 63 years ago, NTSAD has been at the forefront of advancing and supporting breakthrough research through the NTSAD Research Initiative and collaborative programs.

This is an exciting and pivotal time for the NTSAD community. There are three clinical trials in process for GM1 and Late Onset Tay-Sachs and Sandhoff, with other programs in development for Canavan, GM1 and  Tay-Sachs and Sandhoff diseases. Follow NTSAD on Facebook and sign up for email updates to get the latest news.

For Families

An Introduction to Research

Tay Sachs Research

GM1 Research

Canavan Research

Sandhoff Research

NTSAD and Research

 View Current and Past Grants

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