2019 Imagine & Believe Ads and Tickets
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- Last Updated: Wednesday, 02 October 2019 16:01
2019 Imagine & Believe Sponsorships, Tickets & Ads
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- Last Updated: Wednesday, 02 October 2019 16:01
2019 Imagine & Believe
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- Last Updated: Friday, 15 November 2019 17:30
2019 - A Spectacular Evening
Together, with our friends, we honored Dr. Cynthia Tifft at the October 30, 2019 Imagine and Believe evening at the Sonesta Hotel in Cambridge. Dr. Tifft is Deputy Clinical Director of the National Human Genome Research Institute/NIH. We imagined and believed and we raised over $140,000!
Wednesday, October 30, 2019
6-9 pm
Royal Sonesta Hotel
40 Edwin Land Blvd
Cambridge, MA
Dinner | Auction | Program
Join our generous sponsors and attendees here to support NTSAD.
If you cannot make it to the event but would like to make a gift to support NTSAD, please click here.
For 62 years, NTSAD has been bringing together leaders in the rare disease community to share, learn, network, and collaborate with families, researchers, clinicians and friends. NTSAD’s annual Imagine & Believe is a vital part of this effort.
Through Imagine & Believe we:
- Connect affected families with leaders in research, biotech, medicine, and clinical pursuits with a goal of learning from the past, discussing the state of rare diseases, and building partnerships for the future
- Raise money to fund research, promote and steward these partnerships, and serve our families.
- Bring toghether families, Board members, and attendees who are very well networked in the Boston biotech community, especially in rare diseases. Among them are industry partners, researchers, and clinicians.
Join us in honoring Cynthia Tifft, MD, PhD, Deputy Clinical Director of the National Human Genome Research Institute/NIH. A trusted partner and advisor to NTSAD since 1998, Dr. Cynthia Tifft is an accomplished clinician and scientist, and an extraordinary advocate for the rare disease community. Always prioritizing the children and adults for whom she cares, Dr. Tifft has led an almost 20-year long natural history study for storage disorders laying essential groundwork for clinical trials. Dr. Tifft is the Principal Investigator for a newly opened GM1 gangliosidosis Type II gene therapy clinical trial, a career milestone.
Silent Auction
Take a peek at our Silent Auction Wish List offerings here to purchase and contribute an item!
Sponsorship
Join our generous sponsors here to support NTSAD.
Donate
If you cannot make it to the event but would like to make a gift to support NTSAD, please click here.
Embree Alexander Fund
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- Last Updated: Tuesday, 14 January 2020 11:40
The Embree Alexander Fund was established by Kyle and Caitrin Alexander in memory of their daughter, Embree, who passed away from infantile Sandhoff disease in 2018. Read about this beautiful little girl below.
This Fund contributes toward research and support for families.
Donations by Mail or Phone:
(617) 277-4463
Checks payable to NTSAD
2001 Beacon Street, Suite 204
Boston, MA 02135
To set up annual recurring donations, please contact us at (617) 277-4463.
Embree Ray Alexander
June 11, 2017 - September 17, 2018
Even though Embree’s life on this earth was far too short, she continues to leave a lasting impression on the hearts of many. A beautiful little girl that brought so much joy and light to our lives, she lived a sinless life and knew nothing but pure love. Some of her favorite things included being sung to while cuddled up with her parents and of course, getting playful doggy-kisses from her pet lab, Kinzie. We have fond memories of her sweet smile and how she would often get the cutest little hiccups when something made her giggle too hard.
At 11 months old, Embree was diagnosed with infantile Sandhoff disease. She was only able to sit up with support for about a month before this terrible disease began to run its course. Because of progressive muscle weakness and atrophy, she lost all trunk support. As the disease progressed, Embree also lost her vision, her ability to swallow, and began having seizures.
Embree gained her angel wings on September 17, 2018. She was only 15 months old. We want everyone to know our daughter’s story and how she continues to influence our lives for the better. NTSAD (National Tay-Sachs and Allied Diseases) has been a wonderful support system for our family since our daughter’s diagnosis. Clinical trials for these diseases are underway and we want to see a cure! We want Embree’s legacy to live on.
Help us honor her memory by learning about Sandhoff and the other allied diseases. Helping spread awareness is so crucial to hopefully bringing an end to such heartbreaking losses. Doctors and scientists are on their way to some amazing breakthroughs, but not without our help. Please consider making a donation to NTSAD, a non-profit organization, in memory of our sweet girl.
With love and appreciation,
Kyle and Caitrin Alexander
Mollie Margolis Fund
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- Last Updated: Tuesday, 14 January 2020 11:38
The Mollie Margolis Fun was established by Meredith and Jim Margolis
in memory of their daughter, Mollie, who passed away from Tay-Sachs in 1991.
This restricted Fund supports family services and the annual family conference.
Donations by Mail or Phone:
(617) 277-4463
Checks payable to NTSAD
2001 Beacon Street, Suite 204
Boston, MA 02135
To set up annual recurring donations, please contact us at (617) 277-4463.