NTSAD's Research Initiative funds research that may lead to treatments for lysosomal storage diseases or leukodystrophies impacting the central nervous system (CNS).  NTSAD solicits proposals annually for innovative research projects that involve basic research, translational studies or clinical studies.  Basic research and translational studies should generate strong preliminary data to enable future major funding.

This year, NTSAD will be joined by the Cure Tay-Sachs Foundation (CTSF) in this RFP. CTSF is a grassroots organization focused on funding Tay-Sachs research since its inception by parents just over ten years ago.

All proposals are reviewed and evaluated by members of the NTSAD Scientific Advisory Committee and other qualified scientists. The final decision of award recipients is determined by the Research Initiative Committee of the NTSAD Board of Directors.

Funding for the grants comes from gifts made to NTSAD's Research Initiative from NTSAD's chapters and affiliates as well as donations and fundraising events.  

 Download the 2018 Request for Proposals Application and Guidelines here.