Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Board of Directors

OFFICERS  

Oralea Marquardt, LCSW 

President

Sara Scaparotti 

Vice President

Michael Richards

Treasurer

Lisajane Romer

Secretary

Staci Kallish, DO

Immediate Past President 

DIRECTORS

Lauren Celano 

Chris Chapman

Gerry Cox, MD, PhD

Bonnie Davis 

Ruth Feldman 

Dawn Jacob Laney MS, CGC, CCRC

Jonathan Katz 

Martha Kleinman

Jon Lawrence

Blyth Lord 

Jamie Ring

Susan Roden

Abby Rogers

Deborah Sanders

Amy Speak  

Carla Steckman

Past Presidents

Staci Kallish, DO
Blyth Lord

Brian Manning
Shari Ungerleider
Kevin Romer
Thomas P. Lord
Bradley L. Campbell
John F. Crowley, JD
Mark P. Madsen
Daniel N. Turner, Esq.
Meredith R. Margolis, PhD
Yvonne Sacks
Daniel Greenberg, Esq.
Sedra Schiffman
Steven Laver, Esq.*
Jayne Mackta
Judith Saperstein
Claire Kahn
Evelyn Sussman*
Ruth Dunkell*
* deceased

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