Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Staff Profiles

Sue Kahn

Sue Kahn joined NTSAD as Executive Director in September 2007.  Sue first learned about NTSAD while at Genzyme Genetics, where prior to NTSAD, she was Senior Director of Business Development.  Sue is responsible for the strategic vision for NTSAD and for day-to-day management.  She has been focusing on NTSAD's research goals by updating the research strategy and collaborating with academia and biotech. To reach Sue, email her at This email address is being protected from spambots. You need JavaScript enabled to view it.

Diana Pangonis

Diana Pangonis is NTSAD's Director of Family Services.  She joined NTSAD in December 1995. Since then she has held the positions of Development Manager, Family Services Coordinator, Interim Executive Director, and Communications Manager. She is responsible for the goals and priorities set for Family Services Programs that are implemented to keep families supported from the point of diagnosis, caring for themselves or their loved ones, to navigating clinical trials and grief. Diana also represents the family voice in NTSAD's work with industry as they develop treatments. To reach Diana, email her at This email address is being protected from spambots. You need JavaScript enabled to view it.

Susan Keliher

Susan Keliher is the Director of Development and Communications and joined NTSAD in April 2020. Susan brings more than 25 years of fundraising experience and marketing expertise to NTSAD. Throughout her career, Susan has raised critical funds for at-risk families and youth. To reach Susan, email her at This email address is being protected from spambots. You need JavaScript enabled to view it..

Becky Benson

Becky Benson is NTSAD's Conference and Family Services Coordinator. She assumed the role of Conference Coordinator in 2014, planning the 37th Annual Family Conference in Reston, Virginia, and took on the Family Services Coordinator role in early 2020. Becky joined NTSAD as a parent after her daughter, Miss Elliott, was diagnosed with Tay-Sachs in 2009. To reach Becky, email her at This email address is being protected from spambots. You need JavaScript enabled to view it..

Sydnie Dimond

Sydnie Dimond is the Development and Communications Associate and supports Susan Keliher. She joined NTSAD in July of 2020. She studied Nonprofit Management and Development at UMass Amherst, and brings fundraising and administration experience from several nonprofits, including the March of Dimes. To reach Sydnie, email her at This email address is being protected from spambots. You need JavaScript enabled to view it..

Login