Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Chapters & Affiliates

NTSAD's Affiliates and Chapters have their own programs and help fund research, family support and educational initiatives offered by the national organization.


Delaware Valley Chapter

Mission: The elimination of Tay-Sachs and Canavan diseases through education and screening

Michael J. Ossip, Co-President
Lauri Sussman Siegel, Co-President
Rebecca Tantala, Executive Director

New York Area Chapter

The New York Area chapter of NTSAD has folded into NTSAD however efforts to raise awareness and funds to support NTSAD's mission continues. To learn more, visit New York Area Fund.


Cameron & Hayden Lord Foundation

Mission: (1) Decrease the incidence of chronic and complex childhood diseases, and (2) Increase the quality of emotional, spiritual and medical care for families facing these diseases.

Alison Lord, President

Mathew Forbes Romer Foundation

Mission: Promote and lead critical awareness, testing, counseling and research initiatives that hold promise for the prevention and eventual care of fatal children's genetic diseases of the brain.

Kevin Romer, President