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Tay-Sachs, Canavan, GM1 and Sandhoff diseases


Late Onset (LOTS) and The Workplace
Tay-Sachs, Sandhoff and GM1 diseases

As a progressive and unpredictable disease, Late Onset Tay-Sachs, Sandhoff or GM1 can have varying affects on your ability to work. Exploring employment options and making decisions about your career are some of the most important things to consider as you are planning your future.

Workplace Options

Reasonable Accommodations
To Tell or Not to Tell
Changing Career Path, if necessary

Know Your Rights

Understanding the legal protections available to you is one way to help you maintain your place in the workforce.

ADA, a law that protects against discrimination
FMLA, job-protected time off work
HIPAA, pre-existing conditions and insurance
COBRA, buy into health insurance if leaving your job