Boston, Mass.– National Tay-Sachs & Allied Diseases (NTSAD) kicked off its 42nd Annual Family Conference with a record-breaking turnout of nearly 400 individuals, including individuals and families affected by Tay-Sachs, Canavan, GM1, and Sandhoff, all rare genetic diseases. The four-day event moved from an in-person gathering in Denver, Colorado to a virtual event because of the Covid 19 pandemic.

National Tay-Sachs & Allied Diseases Announces Research Initiative Grant Recipients

Nation’s first patient advocacy organization awards five grants totaling $266,000

September 18, 2015—BOSTON, MA—National Tay-Sachs & Allied Diseases Association (NTSAD), the nation’s first patient advocacy organization, today announced the awardees of its 2015 Innovative Research Grants. Reflecting an ongoing commitment to fund research aligned with its mission to lead the fight to treat and cure Tay-Sachs (TSD), GM-1, Sandhoff, Canavan (CD) and other related genetic diseases, NTSAD has solicited proposals for basic, translational or clinical research projects. This year’s grants include projects related to newborn screening, gene therapy delivery methods, animal models and international patient registries.

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