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Tay-Sachs, Canavan, GM1 and Sandhoff diseases

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default Keeping Up with NTSAD - Sept/Oct 2015 Popular

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Keeping Up with NTSAD SeptemberOctober 2015.htm

In this issue:

Imagine & Believe
Eight Annual Boston Benefit on Nov 5, 2015

NTSAD Funds Carrier Screening Project
A Unique Opportunity for Prevention

A Step Forward in Europe
European Partner Foundations Start a Registry

Opening Doors
Ensuring Access to Clinical Trials Act of 2015 Passes in the House and U.S. Senate

A Late Onset Story
Cary Berman publishes a book to share his story, "Born with Tay-Sachs"

default Keeping Up with NTSAD - July 2015 Popular

1865 downloads

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Keeping Up with NTSAD - July 2015.htm

In this issue:

21st Century Cures Initiative Moves Ahead: Important Bill Approved by Congress!

Milestones That Matter: Medicare, Medicaid & ADA

A Family's Stay on the Cape: A Summer Wish Granted to Annabel

NTSAD's Fifth Annual Day of Hope: A Day to Rally and Raise Funds for Research!

 

default Keeping Up with NTSAD - June 2015 Popular

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Keeping Up with NTSAD - June 2015.htm

In this Issue: NTSAD 2015 Research Grants Awarded | Inspired to Take Action  | NTSAD's Annual Fund Campaign | Imagine & Believe Benefit | Jewish Genetic Disease Consortium | Cary Berman's book, "Genesis: Born with Tay-Sachs"

default Keeping Up with NTSAD - March 2015 Popular

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Keeping Up with NTSAD - March 2015.html

In this Issue: Everyday Life Foundation | Research Sneak Peak | Family Conference | Quilt of Hope | Creative Fundraising | Save the Dates

default Keeping Up with NTSAD - February 2015 Popular

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Keeping Up with NTSAD - February 2015.html

In this Issue: World Rare Disease Day | 2015 Family Conference | Family Support | Research Fund | Creative Fundraising

pdf Keeping Up with NTSAD - January 2015 Popular

1672 downloads

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KUP_January-2015.pdf

pdf Keeping Up with NTSAD - December 2014 Popular

1450 downloads

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KUP_December-2014.pdf

pdf Keeping Up with NTSAD - October 2014 Popular

1507 downloads

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Keeping-Up-with-NTSAD_October-2014.pdf

pdf Keeping Up with NTSAD - September 2014 Popular

1549 downloads

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Keeping-Up-with-NTSAD_September-2014.pdf

pdf Keeping Up with NTSAD - August 2014 Popular

1762 downloads

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Keeping-Up-with-NTSAD_August-2014.pdf

pdf Keeping Up with NTSAD - July 2014 Popular

1575 downloads

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Keeping-Up-with-NTSAD_July-2014.pdf

pdf Keeping Up with NTSAD Special Conference Edition April 2013 Popular

1496 downloads

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KUP-NTSAD_E-Special_Conference_Edition_4-2013.pdf

An update from "Keeping Up with NTSAD" from the spring of 2013. 

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