Leading the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1 and Sandhoff diseases
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Modified on 09 August 2015 1708 downloads
Topic of the Week - August 7 2015.htm
In this issue:
SWAG items for 5th Annual Day of Hope - T-shirts, bracelets, lunch totes, brochures
Prizes for top 3 fundraisers!
Modified on 16 July 2015 1856 downloads
Topic of the Week - July 13 2015.htm
In this Issue: Welcome to Our New Officers and Board Members
Brian Manning, PresidentBlyth Lord, Vice PresidentAlex Wright, TreasurerRuth Feldman, SecretaryScott Hunger, DirectorSophia Pesotchinsky, Director
Our Thanks to Judith Tsipis
Modified on 23 June 2015 1872 downloads
Topic of the Week - June 19 2015.htm
Taking the Tay Sachs Story to Capitol HillBy Edward Goldstein, Russell and Brooks' Dad
The Advocacy Tool Belt
Modified on 23 June 2015 1826 downloads
Topic of the Week - May 15 2015.htm
Inside this Issue:
Genetics 101: Inheritance
Be Tested, Be Sure
Did You Know...NTSAD administers and funds an International Quality Control Tay-Sachs Testing Program?
FAQSWhen can I have my healthy children screened to see if they are carriers?Where should I go to be screened?I've heard about JScreen; what is it?What do I do if my insurance won't cover the cost of carrier testing?
Modified on 21 May 2015 2219 downloads
Topic of the Week - April 24 2015.htm
A recap of an incredible week at the 2015 NTSAD Annual Conference.
Modified on 21 May 2015 1602 downloads
TOW_12-5-14.pdf
Carrier Screening issue featuring Jewish Genetic Disease Consortium and JScreen information. Carrier Risk Chart included.
Modified on 21 May 2015 1882 downloads
TOW_11-21-14.pdf
Making Your Mark and Making a Difference - Advocacy announcements
Modified on 21 May 2015 1728 downloads
TOW_10-31-14.pdf
Having a safe and fun Halloween with flu season precautions.
Modified on 21 May 2015 4683 downloads
Topic of the Week - October 3, 2014.html
Information about Late Onset Tay-Sachs and Late Onset Sandhoff diseases and highlights of two Late Onset members.
Modified on 21 May 2015 1554 downloads
8-30-13_TOW_AffordableCC-Act.pdf
This article introduces the topic of the week, the patient protection and the affordable care act.
Modified on 04 June 2014 1502 downloads
TOW-Research-Review-PDF-version-2012-13.pdf
A NTSAD research overview, and the 2012-2013 highlights.
Modified on 04 June 2014 1441 downloads
8-16-13_TOW_Sibling Scholarship.pdf
This article includes the topic of the week, sibling scholarships.
Modified on 04 June 2014 1478 downloads
8-23-13_TOW_Research Review.pdf
This article introduces the topic of the week, developing a rapid screening method to identify potential drugs for metachromatic leukodystropy (a lysosomal disease related to Tay-Sachs).
Modified on 04 June 2014 1548 downloads
8-2-13_TOW_In-the-News.pdf
This article includes the topic of the week, families in the news.
Modified on 04 June 2014 1339 downloads
8-9-13_TOW_International-Families.pdf
This article includes the topic of the week, international families and news.
Modified on 21 May 2015 1587 downloads
TOW_5-23-14_Corporate-Advisory-Council.pdf
Modified on 21 May 2015 1811 downloads
Mother's Day, Dragon Style.html
Mother's Day Reflections
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