Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Folder Family Support Resources

Documents

pdf Eva's Butterfly Wishes NORD Popular

943 downloads

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Eva's Butterfly Wishes NORD.pdf

document Bentons Fund Form Popular

996 downloads

Download (docx, 69 KB)

Bentons Fund Form.docx

document Emmas Fund Form Popular

1047 downloads

Download (docx, 82 KB)

Emmas Fund Form.docx

document Grief Reaction Check in Popular

1199 downloads

Download (docx, 41 KB)

Grief-Reaction-Check-in.docx

pdf NTSAD Living with Late Onset Guide copy Popular

4429 downloads

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NTSAD-Living-with-Late-Onset-Guide copy.pdf

pdf NTSAD Care Tip G-tubes Handout Popular

2160 downloads

Download (pdf, 550 KB)

NTSAD-Care-Tip-G-tubes-handout.pdf

pdf NTSAD Care Tip Range of Motion handout Popular

2185 downloads

Download (pdf, 384 KB)

NTSAD-Care-Tip-Range of Motion-handout.pdf

pdf NTSAD Special Siblings Popular

1823 downloads

Download (pdf, 772 KB)

Special-Siblings-Booklet-Electronic.pdf

document NTSAD Care Plan Template Popular

4661 downloads

Download (docx, 315 KB)

CARE-Plan-template-NTSAD.docx

document NTSAD Late Onset Form Popular

1729 downloads

Download (docx, 91 KB)

NTSAD-Adult-Onset-Form.docx

pdf NTSAD Helping Hands Grant Application 2016 Popular

1737 downloads

Download (pdf, 98 KB)

NTSAD-HHG-Application.pdf

Helping Hands Grant Application deadline is January 31, 2016

document NTSAD Family Form Popular

1927 downloads

Download (docx, 17 KB)

NTSAD-Family-Form-only.docx

Join NTSAD by completing this form and sending it to NTSAD's Director of Family Services at This email address is being protected from spambots. You need JavaScript enabled to view it..

document Helping Hands Raffle Selling Tips Popular

2771 downloads

Download (docx, 14 KB)

Helping-Hands-Raffle-Selling-Tips.docx

document NTSAD Helping Hand Grant Application 2014 Popular

1704 downloads

Download (doc, 32 KB)

NTSAD-Helping-Hand-Grant-Application_2014.doc

The application for the NTSAD Helping Hand Grant. NTSAD’s Helping Hand Grants were established to assist families and individuals with some of the costs associated with attending the Annual Conference. It is intended to aid families and individuals that are otherwise unable to participate in the Conference.

document NTSAD Facebook Group Guidelines 2014 Popular

1677 downloads

Download (docx, 12 KB)

NTSAD-Facebook-Group-Guidelines_2014.docx

The guidelines for the NTSAD Facebook group.

Tay-Sachs, Sandhoff, GM1 and Canavan, in all forms, are devastating diseases that completely change families and lives. By fostering a community of unconditional support and non-judgment for different care choices and perspectives we can share tips, resources and friendship in a safe, supportive and empowering environment.

pdf FILM Professional Order Form Popular

3529 downloads

Download (pdf, 84 KB)

FILM-Professional-Order-Form.pdf

A professional order form for:

A Film For Families: 
Parenting a Child with Life‐Limiting Illness  

pdf FILM Professional Film Tool kit Popular

3431 downloads

Download (pdf, 429 KB)

FILM-Professional-Film-Tool-kit.pdf

This includes a toolkit for screening with a professional audience.

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