Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

News and Email - Community News and more

Weekly, monthly, and quarterly NTSAD news and research reviews



pdf 2022 September NTSAD Community News Popular


Download (pdf, 648 KB)

2022 September NTSAD Community News.pdf

Imagine & Believe 2022

Thank You Sponsors

Day of Hope 2022

Myra Sack Shares Lessons from Daughter Havi

Brady Manning Honors Brother Dylan with Beyond Birdies

College Scholarships for Healthy Siblings

pdf 2022 June NTSAD Community News Popular


Download (pdf, 825 KB)

2022 June NTSAD Community News.pdf

In this Issue

Letter from CEO Kathy Flynn 

NTSAD Awards Grant for GM1 Gene Therapy Study 

NTSAD Awards Grant for Infantile

GM2 Rating Scale 

44th Annual Family Conference 

International GM1 Day 

Celebrating Havi Everyday 

Parent Perspective on Perspective on Grief and Loss

Father's Day

GM1 & GM2 Natural History Study Webinar